Our first two beneficiaries, Jessica and Daysi, both have requirements for Vitamin B12 that are 10,000 times the normal daily needs because the specific chemical reaction involving the processing of B12 in their cells is damaged. Their condition is known as Cobalamin C Disorder, which, without treatment, leads to a buildup of certain chemicals in their bodies that cause high risk for blood clots and stroke.
With The ACIEM Foundation’s support, they receive the required daily injections of B12, which has corrected their biochemical abnormalities and returned them to good health.
The sterile, concentrated, specific B12 for their injections must be made for them at a certified compounding pharmacy and costs their families more than $100 per month. But these life-saving injections are not covered by insurance because they are categorized not as “medicine”, but as “vitamins”.
Yes, as unbelievable as it sounds, these children are covered for the costs of the syringes used to inject their B12, but the actual therapy that will save their lives is not covered.
But with your help, we have made a life-saving difference in their lives. These children, and the thousands born every year who the insurance companies and government agencies forget are forgotten no longer.
And you have made that possible.
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